Experiences Using Patient and Public Involvement in Digital Health Research for Multiple Sclerosis
Yrttiaho, Tiia; Isomursu, Minna; Giunti, Guido
IOS Press
Yrttiaho, T., Isomursu, M., & Giunti, G. (2022). Experiences using patient and public involvement in digital health research for multiple sclerosis. In B. Séroussi, P. Weber, F. Dhombres, C. Grouin, J.-D. Liebe, S. Pelayo, A. Pinna, B. Rance, L. Sacchi, A. Ugon, A. Benis, & P. Gallos (Eds.), Studies in Health Technology and Informatics. IOS Press. https://doi.org/10.3233/SHTI220574
https://creativecommons.org/licenses/by-nc/4.0/
© 2022 European Federation for Medical Informatics (EFMI) and IOS Press. This article is published online with Open Access by IOS Press and distributed under the terms of the Creative Commons Attribution Non-Commercial License 4.0 (CC BY-NC 4.0).
https://creativecommons.org/licenses/by-nc/4.0/
© 2022 European Federation for Medical Informatics (EFMI) and IOS Press. This article is published online with Open Access by IOS Press and distributed under the terms of the Creative Commons Attribution Non-Commercial License 4.0 (CC BY-NC 4.0).
https://creativecommons.org/licenses/by-nc/4.0/
Julkaisun pysyvä osoite on
https://urn.fi/URN:NBN:fi:oulu-202602041590
https://urn.fi/URN:NBN:fi:oulu-202602041590
Tiivistelmä
Abstract
Patient and public involvement (PPI) is increasingly used for improving quality of the research. There are many barriers in translating PPI into practice, including lacking examples of good practices. Frameworks that have been developed in one setting do not readily transfer to other settings. In this paper, we examine the implementation of PPI in the context of a digital health research project that explores the design, development and use of mHealth for persons with Multiple Sclerosis taking an iterative user-centered design approach.
Patient and public involvement (PPI) is increasingly used for improving quality of the research. There are many barriers in translating PPI into practice, including lacking examples of good practices. Frameworks that have been developed in one setting do not readily transfer to other settings. In this paper, we examine the implementation of PPI in the context of a digital health research project that explores the design, development and use of mHealth for persons with Multiple Sclerosis taking an iterative user-centered design approach.
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