The Role of Digital Care Pathway for Epilepsy on Patients’ Treatment Burden: Clinicians’ Perspective
Polus, Manria; Keikhosrokiani, Pantea; Uusimaa, Johanna; Komulainen-Ebrahim, Jonna; Annunen, Johanna; Khan, Sehrish; Behutiye, Woubshet; Vieira, Päivi; Isomursu, Minna (2024-05-05)
Springer
05.05.2024
Polus, M. et al. (2024). The Role of Digital Care Pathway for Epilepsy on Patients’ Treatment Burden: Clinicians’ Perspective. In: Särestöniemi, M., et al. Digital Health and Wireless Solutions. NCDHWS 2024. Communications in Computer and Information Science, vol 2083. Springer, Cham. https://doi.org/10.1007/978-3-031-59080-1_19
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© 2024 The Author(s). This chapter is licensed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license and indicate if changes were made. The images or other third party material in this chapter are included in the chapter’s Creative Commons license, unless indicated otherwise in a credit line to the material. If material is not included in the chapter’s Creative Commons license and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder.
https://creativecommons.org/licenses/by/4.0/
© 2024 The Author(s). This chapter is licensed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license and indicate if changes were made. The images or other third party material in this chapter are included in the chapter’s Creative Commons license, unless indicated otherwise in a credit line to the material. If material is not included in the chapter’s Creative Commons license and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder.
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Julkaisun pysyvä osoite on
https://urn.fi/URN:NBN:fi:oulu-202405063149
https://urn.fi/URN:NBN:fi:oulu-202405063149
Tiivistelmä
Abstract
Epilepsy is a chronic neurological disorder, requiring long-term treatment. The workload and impact of treatment causes a significant burden to patients. Digital care pathways may have potential for reducing treatment burden, but there also may be concerns of additional burden caused by digital healthcare. The aim of this study is to investigate the role of digital care pathway on treatment burden for patients with epilepsy. This was a single case study with the digital care pathway for epilepsy in the Wellbeing Services County of North Ostrobothnia (Pohde), in Finland, as a unit of analysis. The data was collected by observing an expert meeting of three clinicians. The meeting focused on five pre-defined domains of treatment burden: Medication burden, Time and travel burden, Financial burden, Social and emotional burden, and Healthcare access burden. The data was analyzed qualitatively and organized based on the pre-defined categories. The results suggest that the digital care pathway supports patients with treatment burden for all the pre-defined domains. Reported benefits include reduced travel, options for remote appointments, providing informational support and easier ways to contact healthcare professionals (HCPs). The main concerns clinicians had was could the use of digital care pathway cause rushed treatment decisions, difficulties of building trust and seeking support from HCPs, and difficulties of using the digital systems. A new theme emerged from the data, Diverse burdens, highlighting the variety of patients with epilepsy with differing needs for treatment.
Epilepsy is a chronic neurological disorder, requiring long-term treatment. The workload and impact of treatment causes a significant burden to patients. Digital care pathways may have potential for reducing treatment burden, but there also may be concerns of additional burden caused by digital healthcare. The aim of this study is to investigate the role of digital care pathway on treatment burden for patients with epilepsy. This was a single case study with the digital care pathway for epilepsy in the Wellbeing Services County of North Ostrobothnia (Pohde), in Finland, as a unit of analysis. The data was collected by observing an expert meeting of three clinicians. The meeting focused on five pre-defined domains of treatment burden: Medication burden, Time and travel burden, Financial burden, Social and emotional burden, and Healthcare access burden. The data was analyzed qualitatively and organized based on the pre-defined categories. The results suggest that the digital care pathway supports patients with treatment burden for all the pre-defined domains. Reported benefits include reduced travel, options for remote appointments, providing informational support and easier ways to contact healthcare professionals (HCPs). The main concerns clinicians had was could the use of digital care pathway cause rushed treatment decisions, difficulties of building trust and seeking support from HCPs, and difficulties of using the digital systems. A new theme emerged from the data, Diverse burdens, highlighting the variety of patients with epilepsy with differing needs for treatment.
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