Evaluation of more stamina, a mobile app for fatigue management in persons with multiple sclerosis : protocol for a feasibility, acceptability, and usability study
Giunti, Guido; Rivera-Romero, Octavio; Kool, Jan; Bansi, Jens; Sevillano, Jose Luis; Granja-Dominguez, Anabel; Izquierdo-Ayuso, Guillermo; Giunta, Diego (2020-02-11)
Giunti G, Rivera-Romero O, Kool J, Bansi J, Sevillano JL, Granja-Dominguez A, Izquierdo-Ayuso G, Giunta D, Evaluation of More Stamina, a Mobile App for Fatigue Management in Persons with Multiple Sclerosis: Protocol for a Feasibility, Acceptability, and Usability Study, JMIR Res Protoc 2020;9(8):e18196, URL: https://www.researchprotocols.org/2020/8/e18196, DOI: 10.2196/18196, PMID: 32749995, PMCID: 743563
©Guido Giunti, Octavio Rivera-Romero, Jan Kool, Jens Bansi, Jose Luis Sevillano, Anabel Granja-Dominguez, Guillermo Izquierdo-Ayuso, Diego Giunta. Originally published in JMIR Research Protocols (http://www.researchprotocols.org), 04.08.2020. This is an open-access article distributed under the terms of the Creative Commons Attribution License (https://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work, first published in JMIR Research Protocols, is properly cited. The complete bibliographic information, a link to the original publication on http://www.researchprotocols.org, as well as this copyright and license information must be included.
https://creativecommons.org/licenses/by/4.0/
https://urn.fi/URN:NBN:fi-fe2020092475662
Tiivistelmä
Abstract
Background: Multiple sclerosis (MS) is one of the world’s most common neurologic disorders leading to severe disability in young adults. MS-related fatigue directly impacts on the quality of life and activity levels of people with MS. Self-management strategies are used to support them in the care of their health. Mobile health (mHealth) solutions can offer tools to help symptom management. Following a user-centered design and evidence-based process, an mHealth solution called More Stamina was created to help persons with MS manage their fatigue.
Objective: The overall study aims are to explore the feasibility, acceptability, and usability of More Stamina, a mobile app for fatigue self-management for persons with MS.
Methods: A mixed-methods, multicenter study will be used to assess the feasibility, acceptability, and usability of More Stamina. The study will take place during the third and fourth quarters of 2020 (Q3-Q4 2020) in 3 locations: Argentina, Spain, and Switzerland. A longitudinal cohort study will take place, and think-aloud protocols, open-ended interviews, and short answer questionnaires will be used. Persons with MS will be recruited from the different locations. This study seeks to enroll at least 20 patients that meet the criteria from each site for the longitudinal cohort study (total n=60).
Results: Ethical approval has been granted in Argentina and is pending in Spain and Switzerland. Outcomes will be published in peer-reviewed medical journals and presented at international conferences.
Conclusions: Findings from this study will be used to help understand the role that mHealth can play in fatigue management in MS.
Kokoelmat
- Avoin saatavuus [36660]
