Early detection, diagnosis and intervention services for young children with autism spectrum disorder in the European Union (ASDEU) : family and professional perspectives
Bejarano-Martin, Alvaro; Canal-Bedia, Ricardo; Magan-Maganto, Maria; Fernandez-Alvarez, Clara; Cilleros-Martin, Maria Victoria; Sanchez-Gomez, Maria Cruz; Garcia-Primo, Patricia; Rose-Sweeney, Mary; Boilson, Andrew; Linertova, Renata; Roeyers, Herbert; Van der Paelt, Sara; Schendel, Diana; Warberg, Christine; Cramer, Susanne; Narzisi, Antonio; Muratori, Filippo; Scattoni, Maria Luisa; Moilanen, Irma; Yliherva, Anneli; Saemundsen, Evald; Loa Jonsdottir, Sigridur; Efrim-Budisteanu, Magdalena; Arghir, Aurora; Papuc, Sorina Mihaela; Vicente, Astrid; Rasga, Celia; Roge, Bernadette; Guillon, Quentin; Baduel, Sophie; Kafka, Johanna Xenia; Poustka, Luise; Kothgassner, Oswald D.; Kawa, Rafal; Pisula, Ewa; Sellers, Tracey; Posada de la Paz, Manuel (2019-10-12)
Bejarano-Martín, Á., Canal-Bedia, R., Magán-Maganto, M. et al. Early Detection, Diagnosis and Intervention Services for Young Children with Autism Spectrum Disorder in the European Union (ASDEU): Family and Professional Perspectives. J Autism Dev Disord (2019). https://doi.org/10.1007/s10803-019-04253-0
© Springer Science+Business Media, LLC, part of Springer Nature 2019. This is a post-peer-review, pre-copyedit version of an article published in J Autism Dev Disord. The final authenticated version is available online at https://doi.org/10.1007/s10803-019-04253-0.
https://rightsstatements.org/vocab/InC/1.0/
https://urn.fi/URN:NBN:fi-fe2020041516648
Tiivistelmä
Abstract
Early services for ASD need to canvas the opinions of both parents and professionals. These opinions are seldom compared in the same research study. This study aims to ascertain the views of families and professionals on early detection, diagnosis and intervention services for young children with ASD. An online survey compiled and analysed data from 2032 respondents across 14 European countries (60.9% were parents; 39.1% professionals). Using an ordinal scale from 1 to 7, parents’ opinions were more negative (mean = 4.6; SD 2.2) compared to those of professionals (mean = 4.9; SD 1.5) when reporting satisfaction with services. The results suggest services should take into account child’s age, delays in accessing services, and active stakeholders’ participation when looking to improve services.
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