Outcomes of 40 nonsyndromic sagittal craniosynostosis patients as adults : a case-control study with 26 years of postoperative follow-up
Salokorpi, Niina; Savolainen, Tuula; Sinikumpu, Juha-Jaakko; Ylikontiola, Leena; Sándor, George K.; Pirttiniemi, Pertti; Serlo, Willy (2018-04-02)
Niina Salokorpi, Tuula Savolainen, Juha-Jaakko Sinikumpu, Leena Ylikontiola, George K Sándor, Pertti Pirttiniemi, Willy Serlo; Outcomes of 40 Nonsyndromic Sagittal Craniosynostosis Patients as Adults: A Case-Control Study With 26 Years of Postoperative Follow-up, Operative Neurosurgery, Volume 16, Issue 1, 1 January 2019, Pages 1–8, https://doi.org/10.1093/ons/opy047
© 2018 by the Congress of Neurological Surgeons. This is a pre-copyedited, author-produced version of an article accepted for publication in Operative Neurosurgery following peer review. The version of record Niina Salokorpi, Tuula Savolainen, Juha-Jaakko Sinikumpu, Leena Ylikontiola, George K Sándor, Pertti Pirttiniemi, Willy Serlo; Outcomes of 40 Nonsyndromic Sagittal Craniosynostosis Patients as Adults: A Case-Control Study With 26 Years of Postoperative Follow-up, Operative Neurosurgery, Volume 16, Issue 1, 1 January 2019, Pages 1–8, is available online at: https://doi.org/10.1093/ons/opy047.
Background: While sagittal synostosis is the most common craniosynostosis, long-term follow-up of these patients is lacking.
Objective: To evaluate the results of surgical management of those patients with sagittal synostosis who attain adulthood.
Methods: An outcome study of surgically treated isolated sagittal synostosis patients operated between 1977 and 1998 was conducted at the Craniofacial Center of Oulu University Hospital, Oulu, Finland with an average follow-up time of 26.5 yr. Patients’ socioeconomic situation, satisfaction with their own facial appearance and attractiveness as rated by 2 independent panels was evaluated and compared to controls.
Results: The self-satisfaction with the patients’ own appearance scored a mean of 75 mm on a visual analog scale of 100 mm between the patients and 76 mm with the control group. The subjective satisfaction of the patients with their own appearance failed to correlate with the rating of their appearance by the panels. The panels rated the patients’ appearance to be on average 6 to 7 mm out of 100 mm visual analog scale less attractive than the controls. Data on socioeconomic situation, including marital status, housing, education, employment of the patients, and controls are presented.
Conclusions: Isolated sagittal synostosis patients treated surgically were as happy with their facial appearance as were individuals in an age and gender-matched control group. Two independent panels found the patients’ appearance to be only somewhat less attractive. Analysis of the socioeconomic situation and general health revealed that patients equaled that of controls.
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