A latent class approach : characterizing the willingness to share personal health information in Finland
Kiihamäki, Simo-Pekka (2019-08-22)
S.-P. Kiihamäki
22.08.2019
© 2019 Simo-Pekka Kiihamäki. Tämä Kohde on tekijänoikeuden ja/tai lähioikeuksien suojaama. Voit käyttää Kohdetta käyttöösi sovellettavan tekijänoikeutta ja lähioikeuksia koskevan lainsäädännön sallimilla tavoilla. Muunlaista käyttöä varten tarvitset oikeudenhaltijoiden luvan.
Julkaisun pysyvä osoite on
https://urn.fi/URN:NBN:fi:oulu-201908232813
https://urn.fi/URN:NBN:fi:oulu-201908232813
Tiivistelmä
BACKGROUND: With the fast advances in technology, the aging populations, and the climate change, the amount of data in our hands has become enormous, and the ways of handling it has become better. There has been large amount of privacy concerns as well due to the fast-growing data that are spread everywhere. This study focuses on health data to find out whether personal characteristics can be associated with the willingness to consent it for secondary purposes.
METHODS: A sample data (n=2338) concerning the Finnish populations attitudes towards secondary uses of health data was acquired and analyzed. The questionnaire included 14 questions regarding the willingness to consent data for different purposes. The dimensionality of this issue was reduced with a latent class analysis, and the information was condensed into one latent variable with 5 classes. After that a latent class regression was performed to find out whether the willingness could be explained with the help of other background information.
RESULTS: A statistically significant association between the willingness to consent health data and the following characteristics; Gender, Age, Education, Perception of health, Number of visits to health or social care, and Financial situation. Political orientation had a high value of estimate, but no significance.
CONCLUSIONS: Secondary uses of health data can achieve improvements in public health and welfare and health equality. Therefore, it is important that we make sure that the privacy concerns of using and sharing health data are taken care of. Methods for increasing the citizens willingness to consent their health data could be done through education and by building mutual trust between the health care system and the patients.
METHODS: A sample data (n=2338) concerning the Finnish populations attitudes towards secondary uses of health data was acquired and analyzed. The questionnaire included 14 questions regarding the willingness to consent data for different purposes. The dimensionality of this issue was reduced with a latent class analysis, and the information was condensed into one latent variable with 5 classes. After that a latent class regression was performed to find out whether the willingness could be explained with the help of other background information.
RESULTS: A statistically significant association between the willingness to consent health data and the following characteristics; Gender, Age, Education, Perception of health, Number of visits to health or social care, and Financial situation. Political orientation had a high value of estimate, but no significance.
CONCLUSIONS: Secondary uses of health data can achieve improvements in public health and welfare and health equality. Therefore, it is important that we make sure that the privacy concerns of using and sharing health data are taken care of. Methods for increasing the citizens willingness to consent their health data could be done through education and by building mutual trust between the health care system and the patients.
Kokoelmat
- Avoin saatavuus [37957]